The One in a Million Baby is the home of my blog and podcast.

My blog began in 2013 when I was pregnant with my daughter, Eva. It follows my pregnancy and Eva’s birth, as well as her diagnosis and then her death in February 2015. It now chronicles my life after Eva, my grief, and the projects I am working on in her honour.

The podcast began in September 2015 and interviews different families living with special and medically fragile kids. It aims to tell the stories of those families so that those who are going through something similar can feel less alone, and those not in our shoes can learn about our lives.

If you are interested in being a part of the project, email The One in a Million Baby.


6 thoughts

  1. Before I had Morgan I was so sure of my opinions and my view of the world. Morgan is 17 and I’m still as bemused as I was after he was born. There is no more certainty but with that comes quite a lot of freedom. Life is one great big bucket of grey. You, dear woman, seem to have embraced your grey even after the death of your beautiful beautiful little girl. Stay there if you can. Us grey women understand the pointlessness of being right. The point, as you remind us so well, is to have no point. Just go with the river and let it take you where it needs to go. Eva will be with you forever and in everything you do.

  2. Beautiful! You are brutally honest and it is so refreshing. I do not have a special needs child, but as a nurse, I worked with several special needs children. I loved it! The rewards were immeasurable. I worked with the family not just the child. I got just as excited over the small things as the family did. I was there not only see after the needs of the child, but give the family a little time to themselves where they could go and do things they wanted knowing their child was safe and in good hands. I was truly blessed to have known and work with special unique families. I think what you are doing is awesome and I hope for you it will bring you comfort. God bless you.

    1. Thank you! I am so confident those families just loved having someone else appreciate the small victories like they did. It’s so fantastic when people outside the immediate family “get it” in the way that you clearly do. Thank you for your kind message and for reading.

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