Episode 29: Pierce and Nicole – life with Moebius Syndrome

Today is Moebius Syndrome Awareness Day, and today I share the story of Pierce and his mom Nicole in honour of that. Nicole an

New Series – Education: Ep1 with Emily Writes

Education: Ep 01 Transcript Last year on election night, when it looked like National would enter another term, I decided I ne

Episode 28: Jasmine, Mylee and The Grief Project

Jasmine Platt’s daughter, Mylee, was diagnosed shortly after birth as having a catastrophic brain condition known as bur

Ep 27: Lucy and Alex – parenting when your child is transgender and Autistic

Alex knew from early on that Lucy was a unique child. She was diagnosed with Autism, as her mother suspected, and a few years

Episode 26: David Jnr, David and Jane – life after a wrongful birth suit

Episode 26 Transcript When David and Jane had David Jnr.* they had no idea that anything was wrong. When David Jnr was born wi

Episode 25: Xavier and Adrianne – Schinzel Giedion Syndrome

Content warning: this episode discusses child loss and grief.  Episode 25 Transcript. When Adrianne and her husband had their

Episode 24: Dr. Robin McEvoy, co-author of Child Decoded

Developmental neuropsychologist Dr. Robin McEvoy and LEAP specialist Kim Gangwish work with families to help children with lea

Episode 23: Liam and Eric – Life with Miller Dieker Syndrome

When Eric and his wife found out their newborn son, Liam, had Miller Dieker Syndrome, they didn’t react the way many cou

Episode 22: Charlie and Loretta

Charlie was four years old when his mum Loretta started to wonder if some of his behaviour was more than just every day kid st

Episode 21: Kai and Andrea – life with Trisomy 21

For most parents of children with Down Syndrome, a diagnosis comes while they are still pregnant, or at birth. Down Syndrome i

Episode 20: Heather and The Lucky Few

Episode 20 transcript When Heather Avis and her husband realised they couldn’t have their own biological children they t

Episode 19: Ellie and Beth – life with LBSL

Episode 19 Transcript When Ellie and Mike found out their daughter, Ellie, had a rare form of leukodystrophy called leukoencep

Episode 18: Savannah and David – And Yet We Rise

Episode 18 Transcript.  It is my very great pleasure to bring you our first Dad on the show. David Borden is a writer, artist

Episode 17: Tre and LaTanya – living with arthrogryposis and autism

Episode 17 Transcript LaTanya and her husband Greg had two miscarriages before having their son, Tre. When he was born, it bec

Episode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor

Episode 16 Transcript I have had the honour of featuring so many amazing families on my show. Each parent has shown a level of

Episode 15: Frankie and Carrie – living with Mowat Wilson and West Syndromes

Episode 15 Transcript When Carrie Avila-Mooney first got in touch with me, she said was a listener of the podcast and that she

Episode 14: Victoria and Ashley

Episode 14 Transcript Ashley Jones and her husband Keith had no idea of the rollercoaster ride they were going to get on when

Episode 13: Amy Street with Bella Pacific Media

Episode 13 Transcript I’m interrupting the normal once a month episode pattern with a special interview with Viv Kernick

Episode 12: Ali and Angela – living with FOP

Episode 12 Transcript  There’s a certain belief in the special needs world that it’s wrong to want to change your

Episode 11: Fiona and Heather – living with Wolf Hirschhorn Syndrome

Episode 11 Transcript I have been reading my next guest’s blog Star in her Eye for so long now, I don’t know when

Episode 10: Dylan and Kim – life with CHARGE Syndrome

Episode 10 Transcript. It gives me immense pleasure to share this next episode. It features a fellow CHARGE parent, Kim Lauger

Episode 09: Vivian and Meghan – living with Dravet Syndrome

Episode 09 transcript. Meghan and her husband Brian never thought they would be moving almost 2,000 miles across the United

Episode 08: Stacey and Thomas

Episode 8 Transcript This next episode is only the second time I have been able to interview a family in person. I drove up to

Episode 07: Evie and Rachel- The Super Power Baby Project

Episode 07 Transcript It is my pleasure and honour, and just well I’m giddy, to announce my next guest on the podcast, R

Episode 06: Adonis and Zinzele

  Episode 06 Transcript This episode marks a special point for the podcast, because Zinzele is the first parent to contac

Episode 5: Lydia and Danae – Part 2

Episode 05 Transcript In the first part of this episode I introduced Lydia and her mother Danae. We heard about the challenges

Episode 04: Lydia and Danae – part 1

The podcast has had a break. A long break really. But it’s back. Episode 04 Transcript I am so incredibly proud to intro

Episode 03: Chiara and Natalie

Episode 03 Transcript I first discovered Natalie and her beautiful daughter Chiara not long after Eva was born. I was in despe

Episode 02: Thomas and Cassie – living with quadriplegic cerebral palsy

I first met Cassie when we were both pregnant. I asked a panicky question about nuchal measurements in a Huggies mothers’

Episode 01: Jacob and Jen

Months ago, I emailed a group of mothers who I have met through various means, but mostly through the blog. They all have chil