Welcome to The One in a Million Baby, the home of my blog and podcast.


My blog began in 2013 when I was pregnant with my daughter, Eva. It follows my pregnancy and Eva’s birth, as well as her diagnosis and then her death in February 2015. It now chronicles my life after Eva, my grief, and the projects I am working on in her honour.


The podcast began in September 2015 and interviews different families living with special and medically fragile kids. It aims to tell the stories of those families so that those who are going through something similar can feel less alone, and those not in our shoes can learn about our lives. Follow the blog through itunes or through Stitcher Radio. 

Or listen to the lates episodes through the blog right here. 

If you are interested in being a part of the project, email The One in a Million Baby.


22 thoughts

  1. Before I had Morgan I was so sure of my opinions and my view of the world. Morgan is 17 and I’m still as bemused as I was after he was born. There is no more certainty but with that comes quite a lot of freedom. Life is one great big bucket of grey. You, dear woman, seem to have embraced your grey even after the death of your beautiful beautiful little girl. Stay there if you can. Us grey women understand the pointlessness of being right. The point, as you remind us so well, is to have no point. Just go with the river and let it take you where it needs to go. Eva will be with you forever and in everything you do.

  2. Beautiful! You are brutally honest and it is so refreshing. I do not have a special needs child, but as a nurse, I worked with several special needs children. I loved it! The rewards were immeasurable. I worked with the family not just the child. I got just as excited over the small things as the family did. I was there not only see after the needs of the child, but give the family a little time to themselves where they could go and do things they wanted knowing their child was safe and in good hands. I was truly blessed to have known and work with special unique families. I think what you are doing is awesome and I hope for you it will bring you comfort. God bless you.

    1. Thank you! I am so confident those families just loved having someone else appreciate the small victories like they did. It’s so fantastic when people outside the immediate family “get it” in the way that you clearly do. Thank you for your kind message and for reading.

  3. Thank you for continuing to share. I think about you and Eva often. And you are right,that space inbetween is were we live, and the edges of normal seem so far away. Charge on ♡

  4. I was brought here by a post I saw on the mighty. In about 10 minutes I had read most of what I could about your and Eva’s journey. I just had to tell you how amazing and remarkable you are and how blessed you and Eva both were to have eachother. I can’t imagine your grief, but I think about it a lot with my own son, and it brings me to tears to just think of it. I am deeply sorry for your precious loss. She was beautiful, and I’m so happy that you saw that, held on to her tight and fought for her so hard. I would be happy if i could ever become half as good a mother as you. Hugs.

  5. As I sit here watching my daughter who is called Ava, struggling to breathe and bring her temperature down in hospital, because she too has CHARGE syndrome – your blog has Truely touched me. you’re remarkable to write the way you do, your love for Eva shines through I can’t imagine how hard it has and is for you. God bless x

  6. I stumbled across your blog tonight and ended up reading quite a bit of it. I just wanted to let you know how touching and beautiful and hard I found your blog and how glad I am to have been able to read it. I watched one of the videos of your daughter giggling and I think her laughter will stick with me for a long time.

  7. Hi Tessa,
    I’m a fellow LST mama who has been following your story for a while. I have been loving the podacast and am currently listening to the latest episode. I am a music therapist in the USA and I work in pediatric palliative care supporting children who are medically fragile and their families. Thank you for giving a voice to parents of medically fragile children. I have been sharing your podcast with colleagues. I so appreciate the honesty and candor of the pocast.

  8. Dear Tessa,
    I found your blog after you have lost Eva and I grew to love that little girl a lot through your wonderful narration of your short life together. Even though I read the Blog description before reading your story from the beginning, it was incredibly difficult reading about Eva’s unexpected passing and your grief following it. I am a mother to two young “typical” kiddos. My husband and I have suffered an unexpected miscarriage of a much-wanted baby at 12 wks this May and I found myself on the Internet looking for answers/reassurance. I don’t remember how I found your blog, but I’m glad I did. I find your honesty gripping and believe your Podcast is doing an important service to many families.
    I’m pregnant again, due in April ’16 but full of fear and anxiety. Loss has a way of robbing you of the blissful ignorance and security like that.
    I love this song and especially the music video and I wanted to share it with you: https://www.youtube.com/watch?v=aWPgJkOdUZU
    Sending you a virtual hug,

    1. Thank you so much for your message. I’m so sorry for the loss of your pregnancy. I will be thinking of you in this new pregnancy. I will check out that song. Thanks so much for reading!

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