Episode 5: Lydia and Danae – Part 2

By on February 12, 2016

[podcast src=”https://html5-player.libsyn.com/embed/episode/id/4143354/height/360/width/480/theme/standard/autoplay/no/autonext/no/thumbnail/yes/preload/no/no_addthis/no/direction/forward/” height=”360″ width=”480″]In the first part of this episode I introduced Lydia and her mother Danae. We heard about the challenges they have faced not having a diagnosis for Lydia, and how they have come to cope with her relentless seizures. In this part of the episode I explore how it is that Danae Read More...




i fear no fate

By on January 13, 2016

This trip has felt at once exciting and terrifying; exhausting and invigorating.  I have been inspired and anxious, panicky and confident. I have sat for hours in airport terminals and train stations, and slept on planes, trains, air mattresses and couches. I have felt a deep sense of connection with the people I am staying Read More...






The full force 

By on December 27, 2015

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be told, I don’t find it Read More...