Support networks

We are a top resource for Special needs families!

I got a lovely email from Total Pediatric Therapy that The One in a Million Baby has been named in their list of best resources for parents of children with special needs. This just made my day. This is exactly why I’ve kept writing and why I started the podcast. Read more

Privacy vs popularity – A response

I started writing about Eva before she was born. Back then I referred to her as “the Peanut”. I kept calling her that for a while after she was born in a slightly misguided effort to give her privacy. The reality was that my blog was not anonymous, so by… Read more

There's a battle going on

There’s a battle going on in the special needs community.  I first became aware of it when I followed a link a mother had posted on facebook to Lauren Swick’s article in the Washington Post. In the article, entitled Writing for the Mighty, for my son and with my son,… Read more

The full force 

The full force 

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be… Read more

Two stops down

Two stops down

I landed in Minneapolis on Saturday afternoon. As I was walking towards the baggage claim, imagining meeting the first of my Mama facebook group, I started to feel my throat getting thick in anticipationg of tears.  At moments on my flights over here, feelings of panic rose in my chest… Read more

The podcast – how you can listen in

The podcast – how you can listen in

If you are new to this blog, or just new to podcasts, I thought I’d just take a moment to introduce you to this side of my site. In October I launched The One in a Million Baby podcast. My plan was to create a resource for new parents who… Read more

Discovering stories – Bethany Van Delft

Discovering stories – Bethany Van Delft

I get so excited about discovering new things these days. New friends to meet. New TV shows to binge watch. New comedians to make me laugh. New stories to inspire me. New music to smile to or cry to. New authors to read. It’s a big part of why I’m… Read more

A taste of things to come

A taste of things to come

I have audio! It’s not much. A quick teaser of the intro I’m planning to play in each episode, but it’s something. Next weekend I am having a pre-interview chat with my first subject, and then we are going to get down to recording. I have a few small kinks… Read more

When a community loses a member

Since the Peanut was given the working diagnosis of CHARGE Syndrome something fairly special has happened. Through the internet, being the magical tool that it is, I have been able to connect with a global CHARGE community. These parents and CHARGErs are supportive, honest, open and helpful. They acknowledge that… Read more

A week of extremes

This week has been busy and mixed, to say the least. It started out with my last post being featured in The Mighty, a website which celebrates diversity and overcoming challenges. The piece was one I struggled to publish, because I knew it didn’t portray me in the best light.… Read more

A preview of things to come

Now that things have calmed down a bit and we are getting into the day to day life of being a baby and Mama, I’ve started thinking a bit more about the future. At the moment, the Peanut and I are living with my very good friends, and possibly two… Read more

Ignoring the whirring of the blades

I remember hearing about parents who didn’t have a break from their baby until they were many months old. They didn’t trust a baby sitter, or their baby was a bad sleeper, or they were exclusively breast fed, or the parents just weren’t ready. I thought to myself, bugger that.… Read more