We are a top resource for Special needs families!

By on August 19, 2016

I got a lovely email from Total Pediatric Therapy that The One in a Million Baby has been named in their list of best resources for parents of children with special needs. This just made my day. This is exactly why I’ve kept writing and why I started the podcast. Read More...


Privacy vs popularity – A response

By on July 6, 2016

I started writing about Eva before she was born. Back then I referred to her as “the Peanut”. I kept calling her that for a while after she was born in a slightly misguided effort to give her privacy. The reality was that my blog was not anonymous, so by giving up my privacy I Read More...

Episode 5: Lydia and Danae – Part 2

By on February 12, 2016

[podcast src=”https://html5-player.libsyn.com/embed/episode/id/4143354/height/360/width/480/theme/standard/autoplay/no/autonext/no/thumbnail/yes/preload/no/no_addthis/no/direction/forward/” height=”360″ width=”480″]In the first part of this episode I introduced Lydia and her mother Danae. We heard about the challenges they have faced not having a diagnosis for Lydia, and how they have come to cope with her relentless seizures. In this part of the episode I explore how it is that Danae Read More...


There's a battle going on

By on January 23, 2016

There’s a battle going on in the special needs community.  I first became aware of it when I followed a link a mother had posted on facebook to Lauren Swick’s article in the Washington Post. In the article, entitled Writing for the Mighty, for my son and with my son, she talks about the debate Read More...


The full forceĀ 

By on December 27, 2015

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be told, I don’t find it Read More...


Two stops down

By on December 11, 2015

I landed in Minneapolis on Saturday afternoon. As I was walking towards the baggage claim, imagining meeting the first of my Mama facebook group, I started to feel my throat getting thick in anticipationg of tears.  At moments on my flights over here, feelings of panic rose in my chest and I thought, I am Read More...


The podcast – how you can listen in

By on December 2, 2015

If you are new to this blog, or just new to podcasts, I thought I’d just take a moment to introduce you to this side of my site. In October I launched The One in a Million Baby podcast. My plan was to create a resource for new parents who are in those crazy first Read More...



A taste of things to come

By on August 24, 2015

I have audio! It’s not much. A quick teaser of the intro I’m planning to play in each episode, but it’s something. Next weekend I am having a pre-interview chat with my first subject, and then we are going to get down to recording. I have a few small kinks to work out with the Read More...


When a community loses a member

By on December 2, 2014

Since the Peanut was given the working diagnosis of CHARGE Syndrome something fairly special has happened. Through the internet, being the magical tool that it is, I have been able to connect with a global CHARGE community. These parents and CHARGErs are supportive, honest, open and helpful. They acknowledge that things can be hard and Read More...