Social pressure on mums

Ms. Harrari, is it you that gets to define quailty of life?

On August 6, The Sydney Morning Herald published a story entitled “Parenting an intellectually disabled child: life forever on duty”¬†about Alex Brown and his mother Vanessa. Alex is a 22 year old man who has Sotos syndrome. He is non verbal and has an intellectual disability. He spends week days… Read more

Privacy vs popularity – A response

I started writing about Eva before she was born. Back then I referred to her as “the Peanut”. I kept calling her that for a while after she was born in a slightly misguided effort to give her privacy. The reality was that my blog was not anonymous, so by… Read more

Feature in the SOFT UK newsletter

Feature in the SOFT UK newsletter

A few weeks ago I was contacted by a representative from SOFT UK, which is a charity that provides information and support to families affected by trisomy 13 (Patau’s syndrome), trisomy 18 (Edwards’ syndrome) and related conditions. They provide support through the many stages families may find themselves in from… Read more

There's a battle going on

There’s a battle going on in the special needs community.  I first became aware of it when I followed a link a mother had posted on facebook to Lauren Swick’s article in the Washington Post. In the article, entitled Writing for the Mighty, for my son and with my son,… Read more

The right decision

The right decision

A few months ago a woman reached out to me through facebook. She was pregnant and the 20 week scans had revealed real problems with the baby. I won’t give too many details, because this isn’t my story to tell, it’s her’s and her family’s. But I will say she… Read more

She comes from a long line of pirates

The Peanut has doctors confused on a number of levels. A key disagreement is between Plastics and Opthalmology over her left eye. The Plastics doctors think it’s a hemangioma (a kind of birth mark) and the Opthalmologists think it’s a cyst. Both doctors know what the other thinks, but neither… Read more

The Peanut is coming home

It’s time to come clean. Get ready for a long read. While people have called me brave and strong and a great mother to the Peanut, I have been keeping something quiet. For the last two months, the Peanut has not been in my care. She has been in the… Read more

Ammunition for those who can't, or won't, go along with "breast is best"

After my little rant about the judgement of pregnant women and new mothers I’ve received a lot of feedback from other mothers who can sympathise. It seems we are all walking around being told how to do things and judged if we don’t follow the orders, while our internal monologues… Read more

Ammunition for those who can’t, or won’t, go along with “breast is best”

After my little rant about the judgement of pregnant women and new mothers I’ve received a lot of feedback from other mothers who can sympathise. It seems we are all walking around being told how to do things and judged if we don’t follow the orders, while our internal monologues… Read more