Episode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor

By on December 1, 2016

Episode 16 Transcript I have had the honour of featuring so many amazing families on my show. Each parent has shown a level of vulnerability and honesty that I could not have expected, but was so grateful for. They speak, unscripted, about their child and their experiences, whereas I get to write my intros and Read More...


Parents sue over birth defect – can we blame them?

By on September 13, 2016

A New Zealand couple living in Australia are suing the medical professionals who allegedly failed to identify the condition for $2.5 million in damages. Their daughter, Aria, who is now two years old was diagnosed with Aicardi Syndrome after an MRI scan revealed the condition. Aria has impaired vision, hearing loss, scoliosis, a dislocated hip and developmental Read More...

Episode 11: Fiona and Heather – living with Wolf Hirschhorn Syndrome

By on August 1, 2016

I have been reading my next guest’s blog Star in her Eye for so long now, I don’t know when I started. Heather Kirn Lanier’s writing about her journey with her daughter Fiona has been a constant, a source of comfort, beauty and grace throughout my whole journey with Eva. Heather is one of those Read More...


Not the post I wanted to write

By on April 18, 2014

I do not want to be writing this post. It has been 11 days since I gave birth to the Peanut, and I have thought a lot about how much I wish I could be writing a different post. I was supposed to be sleep deprived and potentially emotional, but safe at home with my Read More...


The final countdown – and it's much shorter than we thought!

By on April 2, 2014

This baby is not going to wait any longer. While my liver function results were fine, the second part of the test showed my bile salt levels were elevated so the obstetrician is pretty sure I have cholestasis. When I got the call she said, “so I mentioned at our appointment that this would mean Read More...


The final countdown – and it’s much shorter than we thought!

By on April 2, 2014

This baby is not going to wait any longer. While my liver function results were fine, the second part of the test showed my bile salt levels were elevated so the obstetrician is pretty sure I have cholestasis. When I got the call she said, “so I mentioned at our appointment that this would mean Read More...


As a non-believer, I think I’ll just thank my obstetrician

By on February 19, 2014

Today marked our eighth scan to keep a watchful eye on our Peanut. The scans are spreading out in time now, so it has been three weeks since the last one. This means that for at least ten days between this scan and the last I forgot there was anything even wrong with her. She Read More...


To test or not to test

By on January 29, 2014

The 12 week scan is the first major milestone in a lot of couple’s pregnancies. It marks the end of the first trimester, the end of the risky period for miscarriage, the end (hopefully) of the worst of morning sickness, and the first chance to see your baby on screen, alive and wriggling. My doctor Read More...


The shopping list descreases

By on January 20, 2014

It turns out I wasn’t the only one doing research. At our follow up appointment the doctors were almost as stumped as us. When we found out we had an appointment with a genetics person, my first instinct was that she had a syndrome or disease which was causing the eye, heart and brain issues. Read More...


What's normal anyway?

By on January 18, 2014

There’s a lot they don’t tell you about pregnancy and parenthood. I had no idea bleeding noses and headaches were standard practice. Or that morning sickness would feel like the worst hangover I’ve ever had spread over 7 weeks. They didn’t tell me that I would become an expert in disguising a dry retch, or Read More...