Episode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor

By on December 1, 2016

Episode 16 Transcript I have had the honour of featuring so many amazing families on my show. Each parent has shown a level of vulnerability and honesty that I could not have expected, but was so grateful for. They speak, unscripted, about their child and their experiences, whereas I get to write my intros and Read More...


Episode 14: Victoria and Ashley

By on October 1, 2016

Ashley Jones and her husband Keith had no idea of the rollercoaster ride they were going to get on when they had their first child, Victoria. Victoria, who is now a happy 22 month old, was born with a tracheoesophageal fistula (TEF) which is an abnormal connection (fistula) between the esophagus and the trachea, and suffered global Read More...

Parents sue over birth defect – can we blame them?

By on September 13, 2016

A New Zealand couple living in Australia are suing the medical professionals who allegedly failed to identify the condition for $2.5 million in damages. Their daughter, Aria, who is now two years old was diagnosed with Aicardi Syndrome after an MRI scan revealed the condition. Aria has impaired vision, hearing loss, scoliosis, a dislocated hip and developmental Read More...


Episode 11: Fiona and Heather – living with Wolf Hirschhorn Syndrome

By on August 1, 2016

I have been reading my next guest’s blog Star in her Eye for so long now, I don’t know when I started. Heather Kirn Lanier’s writing about her journey with her daughter Fiona has been a constant, a source of comfort, beauty and grace throughout my whole journey with Eva. Heather is one of those Read More...


Feature in the SOFT UK newsletter

By on June 14, 2016

A few weeks ago I was contacted by a representative from SOFT UK, which is a charity that provides information and support to families affected by trisomy 13 (Patau’s syndrome), trisomy 18 (Edwards’ syndrome) and related conditions. They provide support through the many stages families may find themselves in from diagnosis to bereavements to pregnancy Read More...


The true meaning of beauty

By on May 22, 2016

In the last few weeks I have been taking some active steps to help myself. I could feel, and can feel, a hint of depression crawling back into my chest. I feel tired constantly. I’ve stopped running. I’m drinking too much. I want to change that. I can’t rid myself of grief, and I don’t Read More...



The right decision

By on December 1, 2015

A few months ago a woman reached out to me through facebook. She was pregnant and the 20 week scans had revealed real problems with the baby. I won’t give too many details, because this isn’t my story to tell, it’s her’s and her family’s. But I will say she was wondering whether to proceed Read More...



Feature on Real Imprints

By on November 4, 2014

The lovely people over at Real Imprints asked me to write an original piece about the Peanut and me. I crammed a year of blogging into around 4,000 words and submitted it. You can read the first half here. The second half will feature on Thursday. Spoiler alert, we learn the Peanut’s real name. (If you were Read More...