Disability as a unique demonstration of diversity – not misery

By on February 14, 2017

A woman kills her 20 year old daughter and the public’s response is to call it a mercy killing. Donella Knox murdered her 20 year old daughter Ruby, who had severe Autism spectrum disorder and intellectual disability. The Herald reported that Ruby had a number of associated conditions in addition to this. “She also suffered Read More...


Dear Mamas podcast with guest, The One in a Million Baby

By on January 31, 2017

Before Christmas I got together with two fantastic women, Emily Writes and Holly Walker, on their podcast Dear Mamas which features on The Spinoff to talk about what it’s like to be a parent when someone in the family has chronic illness, medical needs or disability. We discussed Eva and The One in a Million Read More...


Episode 15: Frankie and Carrie – living with Mowat Wilson and West Syndromes

By on November 1, 2016

Episode 15 Transcript When Carrie Avila-Mooney first got in touch with me, she said was a listener of the podcast and that she used the podcast as a kind of therapy for herself. She said in her toughest moments she had thought about what would she say if it was her episode, how would she Read More...






Episode 11: Fiona and Heather – living with Wolf Hirschhorn Syndrome

By on August 1, 2016

I have been reading my next guest’s blog Star in her Eye for so long now, I don’t know when I started. Heather Kirn Lanier’s writing about her journey with her daughter Fiona has been a constant, a source of comfort, beauty and grace throughout my whole journey with Eva. Heather is one of those Read More...