Heart troubles

Sign the petition – give Lily a new heart

Sign the petition – give Lily a new heart

I was listening to some people talk about language the other day. They were discussing racial slurs and slurs aimed at the special needs community. They seemed to agree that racial slurs were not ok under any circumstances, but when it came to special needs slurs (we all know which… Read more

Heart Stoppers

Yesterday students and teachers at my school climbed into kids swimming pools full of icy water as part of the Heart Stopper Challenge which raises money for the Heart Kids NZ. Before Eva was born they spotted a hole in her heart. An atrial septal defect, or ASD, which turned… Read more

The non compliant baby

With all the other things going on with Eva, cardiology has been largely ignored. It’s crazy to think when I was pregnant, Eva’s heart was such a concern, and now, her heart is the thing I think about the least. She has had echoes and scans but there has never… Read more

I am the expert

Eva has two paediatricians at the moment. One is at the local hospital and is her main doctor, and the other is in Wellington and saw Eva when she was there in the NICU as a new born and specialises in neurological issues. Thankfully, once we move into Wellington we… Read more

Feature on Real Imprints

The lovely people over at Real Imprints asked me to write an original piece about the Peanut and me. I crammed a year of blogging into around 4,000 words and submitted it. You can read the first half here. The second half will feature on Thursday. Spoiler alert, we learn the Peanut’s… Read more

One thing at a time

Twelve days and counting! We’ve been hospital free for 12 days, with the Peanut’s health getting better each day. For the first couple of days she still seemed unsettled and cried in the breathless way that makes me panicky to calm her down. In my head an imaginary oxygen saturation… Read more

Not the post I wanted to write

I do not want to be writing this post. It has been 11 days since I gave birth to the Peanut, and I have thought a lot about how much I wish I could be writing a different post. I was supposed to be sleep deprived and potentially emotional, but… Read more

As a non-believer, I think I’ll just thank my obstetrician

Today marked our eighth scan to keep a watchful eye on our Peanut. The scans are spreading out in time now, so it has been three weeks since the last one. This means that for at least ten days between this scan and the last I forgot there was anything… Read more

The shopping list descreases

It turns out I wasn’t the only one doing research. At our follow up appointment the doctors were almost as stumped as us. When we found out we had an appointment with a genetics person, my first instinct was that she had a syndrome or disease which was causing the… Read more

What’s normal anyway?

There’s a lot they don’t tell you about pregnancy and parenthood. I had no idea bleeding noses and headaches were standard practice. Or that morning sickness would feel like the worst hangover I’ve ever had spread over 7 weeks. They didn’t tell me that I would become an expert in… Read more

What's normal anyway?

There’s a lot they don’t tell you about pregnancy and parenthood. I had no idea bleeding noses and headaches were standard practice. Or that morning sickness would feel like the worst hangover I’ve ever had spread over 7 weeks. They didn’t tell me that I would become an expert in… Read more