The full forceĀ 

By on December 27, 2015

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be told, I don’t find it Read More...

The City that never sleeps

By on December 22, 2015

They say NYC is the city that never sleeps. I don’t know that I’ve been making the most of that aspect of the city, but it did make me think of other things. This city is so big. There are so many people in a relatively small area. Buildings loom over you almost everywhere you Read More...



Heart Stoppers

By on October 17, 2015

Yesterday students and teachers at my school climbed into kids swimming pools full of icy water as part of the Heart Stopper Challenge which raises money for the Heart Kids NZ. Before Eva was born they spotted a hole in her heart. An atrial septal defect, or ASD, which turned out to be quite large. Read More...




The variety contained within the common

By on December 10, 2014

Yesterday I reblogged a post by Star in her eye about Strange Luck. The piece talked about the luck the writer felt at the issues her daughter didn’t have, in comparison to other children with the same syndrome. Issues most parents don’t ever have to feel lucky about, or don’t ever think to feel lucky Read More...


When a community loses a member

By on December 2, 2014

Since the Peanut was given the working diagnosis of CHARGE Syndrome something fairly special has happened. Through the internet, being the magical tool that it is, I have been able to connect with a global CHARGE community. These parents and CHARGErs are supportive, honest, open and helpful. They acknowledge that things can be hard and Read More...