Friendship

Meeting Chiara and Natalie

Meeting Chiara and Natalie

I am proud of the fact that my guests on the podcast are from all around the world. I want to show both the universality of our experiences and the differences. It does mean, however, that I will likely never meet most of my guests. After I talk to them… Read more

The full force 

The full force 

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be… Read more

The City that never sleeps

The City that never sleeps

They say NYC is the city that never sleeps. I don’t know that I’ve been making the most of that aspect of the city, but it did make me think of other things. This city is so big. There are so many people in a relatively small area. Buildings loom… Read more

Lessons learnt along the way

Lessons learnt along the way

I’m realising a few things already about myself on this trip. 1. I like big cities, but at heart I am a small city girl. The city I live in, Wellington, New Zealand, is compact but busy. It packs a lot in to a small space but in the great… Read more

Heart Stoppers

Yesterday students and teachers at my school climbed into kids swimming pools full of icy water as part of the Heart Stopper Challenge which raises money for the Heart Kids NZ. Before Eva was born they spotted a hole in her heart. An atrial septal defect, or ASD, which turned… Read more

This moment is yours

This moment is yours

My big sister lives in Vancouver, Canada. When Eva was born and things got tough, she had to watch from afar. I know she found it hard. Thankfully, she got to meet Eva before she died. She returned again to New Zealand for Eva’s funeral. Living that far away, I… Read more

Avoiding the flatline

I wrote a few weeks back about meeting the couple at sign language class with the deaf eight month old daughter. A couple of weeks ago they told me there was a high probability their gorgeous girl was also blind, or at least had visual impairment. When the mother said… Read more

The variety contained within the common

Yesterday I reblogged a post by Star in her eye about Strange Luck. The piece talked about the luck the writer felt at the issues her daughter didn’t have, in comparison to other children with the same syndrome. Issues most parents don’t ever have to feel lucky about, or don’t… Read more

When a community loses a member

Since the Peanut was given the working diagnosis of CHARGE Syndrome something fairly special has happened. Through the internet, being the magical tool that it is, I have been able to connect with a global CHARGE community. These parents and CHARGErs are supportive, honest, open and helpful. They acknowledge that… Read more

Happiness breeds happiness

While we were in hospital last week a friend who I haven’t seen for a long time visited the Peanut and me. She had been following the blog so knew the basic run down on the Peanut, but had never met her. She arrived shortly after I had been told… Read more

A preview of things to come

Now that things have calmed down a bit and we are getting into the day to day life of being a baby and Mama, I’ve started thinking a bit more about the future. At the moment, the Peanut and I are living with my very good friends, and possibly two… Read more

THANK YOU!!!

In the last five months I have needed more help and support than I have ever needed in my life. Sometimes I needed someone to talk to. Other times I needed help with making sure I fed myself. There were the times I needed a few words of encouragement. And… Read more

Playing cupid in the friendship department

When I was five years old, making friends was easy. I remember striking up conversations with kids my age almost everywhere I went. I would casually introduce myself and unselfconsciously ask them if they wanted to be my friend.  I made new friends at the library, the local pool, the… Read more