Sign the petition – give Lily a new heart

By on March 22, 2016

I was listening to some people talk about language the other day. They were discussing racial slurs and slurs aimed at the special needs community. They seemed to agree that racial slurs were not ok under any circumstances, but when it came to special needs slurs (we all know which R word I am referring Read More...


I am the expert

By on January 16, 2015

Eva has two paediatricians at the moment. One is at the local hospital and is her main doctor, and the other is in Wellington and saw Eva when she was there in the NICU as a new born and specialises in neurological issues. Thankfully, once we move into Wellington we will just have the Neuro Read More...



One thing at a time

By on October 17, 2014

Twelve days and counting! We’ve been hospital free for 12 days, with the Peanut’s health getting better each day. For the first couple of days she still seemed unsettled and cried in the breathless way that makes me panicky to calm her down. In my head an imaginary oxygen saturation machine is guessing at numbers Read More...


She comes from a long line of pirates

By on October 14, 2014

The Peanut has doctors confused on a number of levels. A key disagreement is between Plastics and Opthalmology over her left eye. The Plastics doctors think it’s a hemangioma (a kind of birth mark) and the Opthalmologists think it’s a cyst. Both doctors know what the other thinks, but neither are prepared to concede and Read More...