Disability

I haven’t totally disappeared

It’s been a while and I’m sorry! Life has been busy. I’ve switched jobs from teaching to content writing and the shift and change of pace is taking quite a bit of energy and brain space. It’s been fantastic, but when I finish work at 5pm (instead of 3.30pm like… Read more

Why I do what I do

Why I do what I do

Over the year I’ve been actively following, listening to, and engaging with as many disability self advocates as I can. I’m aware of my abled position of privilege as an ally, and I’m trying to use the right terminology, and pass the mic, and generally just nott fuck it up.… Read more

Guest interview – Achievement Center of Texas

Guest interview – Achievement Center of Texas

On almost a weekly basis I get an email from an organisation asking to write a guest post for The One in a Million Baby. It’s not something that I do with the blog, but I always appreciate the emails, especially when they come from organisation that are doing good… Read more

Autumn – hues of technicolour depression

Autumn – hues of technicolour depression

We’ve had a terrible summer. The weather never seemed to realise we were waiting in our shorts and singlets, and it held out on us for months. We had days, not weeks, of sunshine, and then suddenly, it was March, and Autumn was upon us. Eva was born at the… Read more

I see a girl…

I see a girl…

I have this photo on my phone of Eva. I spread the apps out across my phone so that there’s a screen with just one app and I can swipe through the screens until I reach her face, free from apps in the way. It’s the face I see before… Read more

#Notspecialneeds

#Notspecialneeds

In the world of social justice, language is important. I consider myself fairly woke, or if I’m honest, in a continuous process of waking up, and almost daily I learn something about the language I’m using in reference to disability, mental health and ableism. I thought I had the disability… Read more

Eva’s third birthday

Eva’s third birthday

Eva’s birthday is coming up. April 6th. She would have been three. Every few months I play a thought experiment, and try to imagine both our lives if she was still here. I imagine the big things, her crawling, her hearing sound with cochlear implants, her and I living together… Read more

Rare Disease Day – my speech

Rare Disease Day – my speech

Last week I gave a speech for the New Zealand Organisation for Rare Diseases on Rare Disease Day. It was just 3 days after Eva’s anniversary and I was a bit worried about how I would cope. I managed to get through till the last paragraph before I cried, so… Read more

Disability as a unique demonstration of diversity – not misery

A woman kills her 20 year old daughter and the public’s response is to call it a mercy killing. Donella Knox murdered her 20 year old daughter Ruby, who had severe Autism spectrum disorder and intellectual disability. The Herald reported that Ruby had a number of associated conditions in addition… Read more