Community

Guest interview – Achievement Center of Texas

Guest interview – Achievement Center of Texas

On almost a weekly basis I get an email from an organisation asking to write a guest post for The One in a Million Baby. It’s not something that I do with the blog, but I always appreciate the emails, especially when they come from organisation that are doing good… Read more

Rare Disease Day – my speech

Rare Disease Day – my speech

Last week I gave a speech for the New Zealand Organisation for Rare Diseases on Rare Disease Day. It was just 3 days after Eva’s anniversary and I was a bit worried about how I would cope. I managed to get through till the last paragraph before I cried, so… Read more

Emily Writes – Rants in the Dark book launch

Emily Writes – Rants in the Dark book launch

When you’re a new mum you need all the community you can get. Sometimes it’s hard to find a community you gel with. Mothers can be judgmental. One mother who is not judgmental, and who has made it her business to share the ins and outs of parenthood and build… Read more

Hekia Parata will have a lot to answer for

I am a high school teacher. The kids I teach are between 12 and 18 and the school I teach at often attracts students with extra learning needs like dyslexia, dyspraxia, Autism, anxiety and depression. We are seen as a school that does this sort of thing well, and not… Read more

Meeting Chiara and Natalie

Meeting Chiara and Natalie

I am proud of the fact that my guests on the podcast are from all around the world. I want to show both the universality of our experiences and the differences. It does mean, however, that I will likely never meet most of my guests. After I talk to them… Read more

Better late than never – the next episode is almost here

The next episode of the podcast is almost here. My goal of releasing each month on the first of the month sort of flew out the window when I spent seven weeks in the USA and got back right before the February issue was due to be published. I’m crawling… Read more

We are all different

We are all different

There’s this strange dichotomy in the world of special needs. There’s the parent on the one hand who says, “I love my child and wouldn’t change a thing about them”. And then there’s the relieved mother who gets a 12 week pregnancy scan of her second child, after having a… Read more

A call for help – Centronuclear myopathy

A call for help – Centronuclear myopathy

I got an email today from a friend. She said there was a family in Wellington who needed help. Their infant daughter, who is 11 weeks, has just been diagnosed with Centro-Nuclear Myopathy.  They have been in the NICU for 11 weeks and while they have a dianogis, there are… Read more

The full force 

The full force 

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be… Read more

The City that never sleeps

The City that never sleeps

They say NYC is the city that never sleeps. I don’t know that I’ve been making the most of that aspect of the city, but it did make me think of other things. This city is so big. There are so many people in a relatively small area. Buildings loom… Read more

Two stops down

Two stops down

I landed in Minneapolis on Saturday afternoon. As I was walking towards the baggage claim, imagining meeting the first of my Mama facebook group, I started to feel my throat getting thick in anticipationg of tears.  At moments on my flights over here, feelings of panic rose in my chest… Read more

It begins! 

It begins! 

Just a short post to announce my arrival in the States. Sixteen hours of flying and I’m here! I’ve still got a few more to go to get to my first official stop, Minneapolis, but the hard part is over. I thought about Eva a lot on the plane. There… Read more

The podcast – how you can listen in

The podcast – how you can listen in

If you are new to this blog, or just new to podcasts, I thought I’d just take a moment to introduce you to this side of my site. In October I launched The One in a Million Baby podcast. My plan was to create a resource for new parents who… Read more

Meeting the women who held vigil for me

Meeting the women who held vigil for me

It’s Wednesday here in New Zealand. In 10 sleeps I will be getting on a plane at an ungodly early hour of the morning and flying to Minneapolis, Minnesota to stay with the first mama from my facebook mama’s group.  Not long after Eva died, the group, which is a… Read more

That old chestnut 

I was reading a special needs mothers’ facebook page today and had to catch my breath for a minute. There was a comment on there  in reaction to a blog post that I felt so strongly about. It wasn’t ableist, or offensive. It didn’t use language that offends in the… Read more

I thought I was the only one

Today I got this message from a woman in a special needs group: “Just listened. This podcast shook me to my core and brought me right back to 9 years ago. Please send a message to Cassie, thanking her for her honesty. Everything she said I felt, I thought I… Read more

This moment is yours

This moment is yours

My big sister lives in Vancouver, Canada. When Eva was born and things got tough, she had to watch from afar. I know she found it hard. Thankfully, she got to meet Eva before she died. She returned again to New Zealand for Eva’s funeral. Living that far away, I… Read more

The next step – The One in a Million baby as a podcast

The next step – The One in a Million baby as a podcast

This post is going to be different. I am excited. Really genuinely excited. I can feel life buzzing away in me. I can feel Eva’s influence on that excitement and feel her steering me gently into the project which is making me so excited. I wrote a while ago about… Read more