Community

Rare Disease Day – my speech

Rare Disease Day – my speech

Last week I gave a speech for the New Zealand Organisation for Rare Diseases on Rare Disease Day. It was just 3 days after Eva’s anniversary and I was a bit worried about how I would cope. I managed to get through till the last paragraph before I cried, so… Read more

Emily Writes – Rants in the Dark book launch

Emily Writes – Rants in the Dark book launch

When you’re a new mum you need all the community you can get. Sometimes it’s hard to find a community you gel with. Mothers can be judgmental. One mother who is not judgmental, and who has made it her business to share the ins and outs of parenthood and build… Read more

Hekia Parata will have a lot to answer for

I am a high school teacher. The kids I teach are between 12 and 18 and the school I teach at often attracts students with extra learning needs like dyslexia, dyspraxia, Autism, anxiety and depression. We are seen as a school that does this sort of thing well, and not… Read more

Meeting Chiara and Natalie

Meeting Chiara and Natalie

I am proud of the fact that my guests on the podcast are from all around the world. I want to show both the universality of our experiences and the differences. It does mean, however, that I will likely never meet most of my guests. After I talk to them… Read more

Better late than never – the next episode is almost here

The next episode of the podcast is almost here. My goal of releasing each month on the first of the month sort of flew out the window when I spent seven weeks in the USA and got back right before the February issue was due to be published. I’m crawling… Read more

We are all different

We are all different

There’s this strange dichotomy in the world of special needs. There’s the parent on the one hand who says, “I love my child and wouldn’t change a thing about them”. And then there’s the relieved mother who gets a 12 week pregnancy scan of her second child, after having a… Read more

A call for help – Centronuclear myopathy

A call for help – Centronuclear myopathy

I got an email today from a friend. She said there was a family in Wellington who needed help. Their infant daughter, who is 11 weeks, has just been diagnosed with Centro-Nuclear Myopathy.  They have been in the NICU for 11 weeks and while they have a dianogis, there are… Read more

The full force 

The full force 

So many of the mothers I am visiting on this trip have worried about how I will cope being around so many children. They have been concerned, quite realistically, that being around healthy, happy kids will be upsetting to me and remind me of what I have lost.  Truth be… Read more

The City that never sleeps

The City that never sleeps

They say NYC is the city that never sleeps. I don’t know that I’ve been making the most of that aspect of the city, but it did make me think of other things. This city is so big. There are so many people in a relatively small area. Buildings loom… Read more

Two stops down

Two stops down

I landed in Minneapolis on Saturday afternoon. As I was walking towards the baggage claim, imagining meeting the first of my Mama facebook group, I started to feel my throat getting thick in anticipationg of tears.  At moments on my flights over here, feelings of panic rose in my chest… Read more

It begins! 

It begins! 

Just a short post to announce my arrival in the States. Sixteen hours of flying and I’m here! I’ve still got a few more to go to get to my first official stop, Minneapolis, but the hard part is over. I thought about Eva a lot on the plane. There… Read more

The podcast – how you can listen in

The podcast – how you can listen in

If you are new to this blog, or just new to podcasts, I thought I’d just take a moment to introduce you to this side of my site. In October I launched The One in a Million Baby podcast. My plan was to create a resource for new parents who… Read more