Episode 18: Savannah and David – And Yet We Rise

By on January 17, 2017

It is my very great pleasure to bring you our first Dad on the show. David Borden is a writer, artist and art teacher who lives in Austin, Texas. His eldest daughter, Savannah had Cerebral Palsy and died in March 2015, age 15. David writes about his daughter and about life at his blog, David Read More...

Episode 17: Tre and LaTanya – living with arthrogryposis and autism

By on January 1, 2017

LaTanya and her husband Greg had two miscarriages before having their son, Tre. When he was born, it became clear there were issues and he was diagnosed with arthrogryposis multiplex congenita, which meant that some of his joints didn’t move as they should. When Tre was seven he was also diagnosed with autism, and LaTanya and Read More...


Rare Disease Day

By on December 19, 2016

Today I met with someone from The New Zealand Organisation for Rare Disorders, NZORD, to talk about Rare Disease Day in February next year. Rare Disease Day is an annual day at the end of February that is celebrated internationally. NZORD is a space for patients, family, friends, clinicians and researchers in the rare disease community Read More...



Episode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor

By on December 1, 2016

I have had the honour of featuring so many amazing families on my show. Each parent has shown a level of vulnerability and honesty that I could not have expected, but was so grateful for. They speak, unscripted, about their child and their experiences, whereas I get to write my intros and outros and craft Read More...


The hardest thing

By on November 29, 2016

On Thursday a new episode of the podcast will come out. Instead of asking the questions, this time I will be the one telling my story. I asked my talented friend Kelsey Dilts McGregor to help me and step in as the host for this episode. Towards the end of our conversation she asked me, Read More...


In which I get a bit political

By on November 20, 2016

I live in NZ, roughly 8,700 miles from Washington DC. So I have refrained from saying much about the recent election. I don’t want voice my opinion and have it feel to Americans as if I am judging them, or speaking out of turn. This isn’t my President and I didn’t get to vote. Instead Read More...


Dreaming of Eva

By on November 19, 2016

All my life I have had an active sleeping life. I’m a sleep talker. Former sleep walker. I do it nightly, sometimes multiple times a night. As a kid, and well into my teens, I walked in my sleep. When I was 15 my Dad built me a mezzanine floor in my bedroom. The mezzanine Read More...