Rare Disease Day

By on December 19, 2016

Today I met with someone from The New Zealand Organisation for Rare Disorders, NZORD, to talk about Rare Disease Day in February next year. Rare Disease Day is an annual day at the end of February that is celebrated internationally. NZORD is a space for patients, family, friends, clinicians and researchers in the rare disease community Read More...


Episode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor

By on December 1, 2016

Episode 16 Transcript I have had the honour of featuring so many amazing families on my show. Each parent has shown a level of vulnerability and honesty that I could not have expected, but was so grateful for. They speak, unscripted, about their child and their experiences, whereas I get to write my intros and Read More...