Goodnight Eva

By on February 26, 2015

What a difference a day makes. Yesterday I was excited about Eva’s new high chair and today there is no Eva to sit in it. Last night at around 9pm Eva woke crying. Both I and my amazing and brave housemate Ess went into comfort her. Ess passed her to me and we could tell Read More...



Triumph

By on February 18, 2015

I’m part of an amazing group of women online. We are the spin off to a larger online group that in turn is the spin off to an amazing parenting podcast, The Longest Shortest Time. This group of spectacular women have supported each other, and me, through some crazy ups and downs over the last Read More...


Blood letting, babies and a good result

By on February 17, 2015

This morning was… busy. Eva had a follow up test after her cortisol levels were shown to be slightly lower than normal at a blood test last week. People with CHARGE Syndrome often have issues with hormones due to the involvement of their pituitary gland. it can affect growth, stress, and other areas of development. Read More...